Sunday 27 March 2011

well here we are 1 year and 3 month later and it turns out my fears were well founded. since i last spoke on here I left uni in Jan 2010 due to my job at The O2 being to demanding and did an NVQ2 in gambling operations and in June I started at a casino in London. In Sep I had a ruptured ovarian cyst and whilst i had that i could hear a familiar whooshing sound in my ears which i tried my best to ignore a dull headache began when i went back to work from being off with the cyst and i began to make mistakes that trainees make not someone with my 5 years experience they were mistakes i would never make under any ordinary circumstances. then one night I fainted and the same thing happened the next night and i spent the rest of the night feeling as though i was on gas and air, i could not concentrate on anything, especially dealing cards or roulette. the next day as i was getting ready for work my mum noticed i was slurring my speech as if i had been drugged. she called NHS direct who told her that because of my history i should go straight to casualty and explain the circumstances and then my history. they then sent me to the ophthalmologist who in turn said my gp needed to refer me to the neuro. so not as urgent as the first time but i knew right then that it was defiantly back.
by the time i saw the neuro i fainting pretty much on a Daley basses i couldn't sleep because of the claymore in my head from both tinnitus and pulsatile tinnitus i was being sick after every meal my left eye was swollen my short term memory was shot to pieces i constantly felt as if i were out of it on drugs without taking any and of course there was the pounding headache.
they confirmed my suspensions.
diagnosis benign intracranial hypertension but he also added in migraines with it. he has put me on diamox and topamax which are both treatments for this condition my weight at that point was 15st 5lb. the reason i am starting this blog again is because BIH (Benign Intracranial Hypertension) or IIH (Idiopathic Intracranial hypertension) as it is mow widely known now is such a rear condition that there is not enough information for patients and not enough Dr's know about the disorder or its symptoms so people can go overlooked not knowing they have it until they need drastic action. we need to raise awareness and fund charities like iih uk so more research is done to find a cure for this debilitating disorder. so myself and a few other sufferers off this thing have decided to do the IIH UK £s for lbs Challenge and starting tomorrow this blog will be used as it was original planed

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