Thursday 31 March 2011

day three

well i got up at 08:00 took thyroxin with glass of water could see this blob in my field of vision and felt reel sick (it was like i had looked at a light blob or something. at 09:00 had breakfast slice of toast with clover marge washed down with diamox, topamax and a glass of water. bout 10:00 called the opticians and asked them for advice about blob they told me to go straight to eye casualty my nearest would probably be moorfields. 14:15 got to moorfields they did a sight test blood pressure and blood sugar test told me that it would be 3 hours before i saw a dr and that i needed to find something to eat something to eat now at my sugar was low. my dad went and got me a cereal bar covered in yogurt i eat half of it i felt so qweesy i could not stomach any more. bout 16:00 fel light headed so had th other half of the cierial bar 17:00 saw optharmologist after examination they said that i had a floater and i could do with new glasses but my discs were clear and there was no sign of a pap coming back (thank god. 17:45 got th london bridge station and had half a baigle 21:30 had chiniese take out tblsp king prawn chowmian, tblsp deep fried shredded beef, tblsp mushroom stirfry
went to bet 02:00

Tuesday 29 March 2011

second day of the IIH UK £ for lb challenge part 1

5:30 alarm went off to take thyroxin took that with a glass of oj and rang my boy friend to get him up for work. went back to sleep.
09:00 got up had for breakfast two slices of toast topped with clover sliced apple and banana washed down with 1 diamox, 1 topamax, 1 codydramol and 1 ponstan and a pint of water
mid morning snack 11:00 was 1, 2oz slice of apple pie with 1 cup of coffee with milk and 2 sugars
lunch at 14:00 was 1, 4oz piece of quiche and salad made with apple, lettuce, tomato, cucumber, carrot and cheese with low fat French dressing
mid afternoon 15:00 2 hot cross buns with cup of tea and codydramol and ponstan

day1 part 2

well i know i was meant to come back on here yesterday to tell you what i had eaten and when. you see the thing is i got so bad i went to sleep at 16:30 and didn't get up till 09:00 this morning.
so lets go through yesterday anyway.
Breakfast was at 09:30 after weigh in on wii 1 slice of wholemeal toast topped with mashed banana no spread, 1 pint of water, 1 codydramol and 1 ponstan.
mid morning snack 11:30 1, 2oz slice of apple pie with a cup of tea.
lunch 14:00 1, 4oz slice of quiche with lettuce tomato spring onion grated carrot 1/2oz of grated cheese and a drizzle of sainsbery's French dressing (only 0.3 g of fat )
desert 15:00 1, 3oz slice apple pie
16:30 went to sleep
21:00 was woken to take 2diamox and 2 topamax large glass water
whent back to sleep

Monday 28 March 2011

first day of the IIH UK £ for lb challenge

well i woke up at 08:30 and took my thyroxin and a glass of orange juice. my head is pounding and my ears are ringing it sounds like there is a dentist drill in my head (wonderful). I go down stares and put on the wii fit so i can weigh myself and discover the batteries in the remote are dead. so i run around the house looking for more but in vein there are non. i call one of the neighbours and she says she will have a look for me. so i get back into bed and go on the pc (i have to wear my tinted glasses as my head is starting to throb. i try to log on to a sight and realise that i have forgotten all the login detail that i set up last night (this illness is destroying me one day at a time). at 09:30 i take 2 diamox and 1 topamax washed down with a glass of water. then my neighbour comes over with the batteries so i get on the wii and do the fitness test .
my BMI = 35.94
Weight = 14st 7lb
Wii fit age = 34
now for the tape measure
Neck = 14"
Bust = 46"
Back = 35"
Waist = 38"
Stomach = 51"
Hips = 48"
Left thigh = 26"
Right thigh = 27"
well that is the painful bit now and that will be repeated next week so we can see if there is any change.
i will post later to give you a break down of what i have eaten today until then

Sunday 27 March 2011

well here we are 1 year and 3 month later and it turns out my fears were well founded. since i last spoke on here I left uni in Jan 2010 due to my job at The O2 being to demanding and did an NVQ2 in gambling operations and in June I started at a casino in London. In Sep I had a ruptured ovarian cyst and whilst i had that i could hear a familiar whooshing sound in my ears which i tried my best to ignore a dull headache began when i went back to work from being off with the cyst and i began to make mistakes that trainees make not someone with my 5 years experience they were mistakes i would never make under any ordinary circumstances. then one night I fainted and the same thing happened the next night and i spent the rest of the night feeling as though i was on gas and air, i could not concentrate on anything, especially dealing cards or roulette. the next day as i was getting ready for work my mum noticed i was slurring my speech as if i had been drugged. she called NHS direct who told her that because of my history i should go straight to casualty and explain the circumstances and then my history. they then sent me to the ophthalmologist who in turn said my gp needed to refer me to the neuro. so not as urgent as the first time but i knew right then that it was defiantly back.
by the time i saw the neuro i fainting pretty much on a Daley basses i couldn't sleep because of the claymore in my head from both tinnitus and pulsatile tinnitus i was being sick after every meal my left eye was swollen my short term memory was shot to pieces i constantly felt as if i were out of it on drugs without taking any and of course there was the pounding headache.
they confirmed my suspensions.
diagnosis benign intracranial hypertension but he also added in migraines with it. he has put me on diamox and topamax which are both treatments for this condition my weight at that point was 15st 5lb. the reason i am starting this blog again is because BIH (Benign Intracranial Hypertension) or IIH (Idiopathic Intracranial hypertension) as it is mow widely known now is such a rear condition that there is not enough information for patients and not enough Dr's know about the disorder or its symptoms so people can go overlooked not knowing they have it until they need drastic action. we need to raise awareness and fund charities like iih uk so more research is done to find a cure for this debilitating disorder. so myself and a few other sufferers off this thing have decided to do the IIH UK £s for lbs Challenge and starting tomorrow this blog will be used as it was original planed